BOSTON - TelAve -- Chandra Clark, well respected and highly-recognized leader in the non-profit community has joined the VHL Alliance as the organization's new Executive Director.  Clark is joining the VHLA team following the announcement that Ilene Sussman is stepping down from the role to retire.

Most recently, Clark has served in nonprofit leadership by developing innovative programs and creatively cultivating opportunities in the community to support the advancement of underserved populations. Her passion lies in advocating for equity in healthcare, education, and economic access to improve the health and well-being of under resourced communities.  With a diverse professional background including business and talent development, fundraising, marketing, and external relations with experience in collaborating with corporations and organizations to develop and implement multi-level projects, partnerships, programs, and community initiatives. Working for the last 15 years in Kansas City, Missouri, Clark has been recognized on numerous occasions for her contributions to the community, including being recognized as a NextGen Leaders from the Kansas City Business Journal, Young Athena Leadership Award from the Kansas City Chamber, and Most Influential Women in Kansas City Business from the Kansas City Business Journal, among others.

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"Chandra brings a dynamic and engaging leadership style built on a foundation of fostering relationships and pursuing strategic progress," said Doug Karle, past Chair of the Board of the VHL Alliance. "As the VHL community continues to make progress towards a cure and our researchers are recognized for their work, as was the case with Dr. Kaelin's Nobel Prize for medicine for his work with VHL, we are lucky to have a progressive and enthusiastic leader joining us to drive the Alliance forward."

"It is such an honor and privilege to be joining the VHL Alliance," stated Clark. "The members of the community, staff, the medical and research professionals, and the partner organizations are all so deeply invested in progress toward a cure for VHL.  I truly look forward to working with everyone as we chart a positive path forward."

Clark begins starts working with the VHL Alliance on September 16, 2020 and will have a transition period with Sussman through the end of the year.

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About the VHL Alliance

The VHL Alliance (VHLA) is the preeminent resource and clearinghouse for those affected by von Hippel-Lindau disease, including patients, caregivers, researchers, and the medical community. VHLA is a 501(c)(3) non-profit organization founded in 1993, which is dedicated to research, education, and support to improve awareness, diagnosis, treatment, and quality of life for those affected by VHL. VHLA is the leading funder of VHL research, funding over $2.3 million in grants to support studies designed to find a cure. The VHL Alliance's vision is Curing Cancer through VHL. For more information, visit www.vhl.org.