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Boston: Council Backs Bill to Improve Sickle Cell Care
TelAve News/10862416
~ During the latest Council meeting, a resolution was passed in support of House Bill H.1347, also known as the "Act to Improve Sickle Cell Care." This state legislation, introduced by Representative Bud L. Williams on January 14, 2025, aims to enhance care for individuals living with Sickle Cell Disease (SCD), an inherited blood disorder that affects red blood cells and can lead to reduced blood flow and oxygen delivery throughout the body.
The bill proposes several measures to improve SCD care, including expanding education and awareness about the disease, establishing partnerships with hospitals and educational institutions, and identifying funding sources for programs that serve patients and families affected by SCD.
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According to data from the Centers for Disease Control and Prevention (CDC), more than 90% of people with SCD in the United States are Black or Latino. These individuals have an average life expectancy that is approximately 20 years shorter than that of the general population.
By passing this resolution in support of H.1347, the Council recognizes the pressing need for increased public health education, early diagnosis, preventative care, and community support for those living with SCD. The resolution reflects the Council's dedication to promoting health equity and improving quality of life for those impacted by this debilitating disease.
The bill proposes several measures to improve SCD care, including expanding education and awareness about the disease, establishing partnerships with hospitals and educational institutions, and identifying funding sources for programs that serve patients and families affected by SCD.
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According to data from the Centers for Disease Control and Prevention (CDC), more than 90% of people with SCD in the United States are Black or Latino. These individuals have an average life expectancy that is approximately 20 years shorter than that of the general population.
By passing this resolution in support of H.1347, the Council recognizes the pressing need for increased public health education, early diagnosis, preventative care, and community support for those living with SCD. The resolution reflects the Council's dedication to promoting health equity and improving quality of life for those impacted by this debilitating disease.
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