REMINGTON, Va. - TelAve -- As the world prepares to celebrate the 15th Anniversary of Moebius Syndrome Awareness Day on January 24, 2026, a new eBook has been released to capture and preserve the story of how MSAD began — and the community effort that helped it grow into a global event.

The book, Moebius Syndrome Awareness Day: A Volunteer-Led Journey Toward Global Recognition, documents more than a decade of early graphics, news coverage, archival materials, and historical milestones. Until now, no single resource has compiled the full history of MSAD or the volunteer spirit that shaped its early years.

Early Recognition on Amazon

Within days of publication, the eBook debuted at #1 on Amazon's Hot New Releases list in the 90-Minute Education & Reference category — a strong sign of growing public interest in Moebius Syndrome and the origins of MSAD.

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Created specifically for the 15th Anniversary, the book gives families, educators, supporters, and newly diagnosed individuals a resource our community has never had before:
a clear, accessible record of how MSAD started, why it matters, and how far the movement has come.

"Looking back on 15 years, we realized our community was in danger of losing its own history," the authors share. "We wanted to make sure future families had a place to learn where MSAD came from — and the incredible volunteer spirit that helped build it."

The Kindle edition is available now for $2.99, with proceeds supporting MFOMS website upkeep and community educational tools.

Kindle Edition: https://tinyurl.com/MSADBOOK
Paperback Edition: Coming Soon

For more information about Moebius Syndrome Awareness Day, visit www.mfoms.org/moebiussyndromeawarenessday.

Contact:
Many Faces of Moebius Syndrome (MFOMS)
tim@mfoms.org
www.mfoms.org